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About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



Experts Fear Potential Abuses of Genetic Screeningby Beth WhitehouseNewsdayJuly 18th, 2008Will parents use embryo selection technology to select a child's characteristics the way you can pick the options on a car?
Conceiving the Future [PDF]Reproductive-justice activists on technology and policyby Andi Zeisler and Emily GalpernBitchJune 6th, 2008Emerging reproductive and genetic technologies have raised critical issues for social-justice movements. This roundtable discussion features some of the women who've been engaged in these national conversations.
Couples Could Win Right to Select Deaf Babyby Richard GrayTelegraphApril 14th, 2008Deaf couples could be allowed to use embryo-screening technology and choose to have a deaf child, after an amendment to a controversial bill to overhaul the UK's oversight of ARTs.
Is it wrong to select a deaf embryo?by Clare MurphyBBC NewsMarch 10th, 2008New fertility legislation will make it illegal to use embryos with a known genetic abnormality in IVF treatment when ones without the same defect are available.
Deaf demand right to designer deaf childrenby Sarah-Kate TempletonThe Times (UK)December 23rd, 2007Deaf parents should be allowed to screen their embryos so they can pick a deaf child over one that has all its senses intact, according to the chief executive of the Royal National Institute for Deaf and Hard of Hearing People.
Vatican talks of 'eugenics culture’ after abortion of wrong twinby Richard OwenTimes Online [UK]August 29th, 2007Italian prosecutors have opened an investigation into a botched selective abortion that the Vatican has described as the result of a “culture of perfection” resembling Nazi eugenics.
Disability Rights Advocates Recall US Eugenics in Washington Post Op-Edby Marcy DarnovskyBiopolitical TimesMay 23rd, 2007Check out this 80th anniversary remembrance of the infamous ruling that upheld Virginia's involuntary sterilization laws.
Prenatal Test Puts Down Syndrome in Hard Focusby Amy HarmonNew York TimesMay 10th, 2007. . . an unusual campaign being undertaken by parents of children with Down syndrome who worry about their future in the face of broader prenatal testing that could sharply reduce the number of those born with the genetic condition.
Quality-controlled embryosby Marcy DarnovskyBiopolitical TimesJanuary 22nd, 2007Last week's news about the "world's first embryo bank" brought much-needed attention to the accelerating marketization of baby-making.
Wanting Babies Like Themselves, Some Parents Choose Genetic Defectsby Darshak M. Sanghavi, M.D.New York TimesDecember 5th, 2006"A coming article in the journal Fertility and Sterility offers a fascinating glimpse into how far some parents may go to ensure that their children stay in their world — by intentionally choosing malfunctioning genes that produce disabilities"
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